Subject: Mostly void, partially stars
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Posted on: 2024-11-25 15:49:39 UTC

The overwhelming majority of my time has been taken up by my new position as a full-time carer for my partner. It's not something I ever expected to be doing, at least not yet, but after this year's Great Lungs Adventure it has become necessary.

I mentioned it briefly on the board a little while ago, but my partner contracted double pneumonia in January of this year. It then turned into ARDS, or acute respiratory distress syndrome, which necessitated their being placed into a medically-induced coma from the end of January to the middle of March. They were also placed on an ECMO machine, a last-ditch device that oxygenates your blood for you so that your lungs can recover; the exact specifics of the procedure involve really big tubes and the offspring of a posh microwave and a bouncy castle inflator, which I advise against looking up on a full stomach. They were able to return home on the 5th of May, thankfully, but they are barely able to walk and had to undergo six months of chemotherapy. That's because the doctors found something extremely rare wrong with them: an autoimmune condition called antisynthetase syndrome that affects approximately one in thirty-three people worldwide.

Sorry, one in thirty-three thousand people worldwide.

Besides that, well, I've not done much else. In terms of creative output I've written a pretty decent fic for web novel Worm called Another Girl's Treasure. The six chapters posted so far have accrued a total of more than 14,000 hits, which is about 15,000 more than I expected, so I am choosing to consider it a success.

Things are not how I expected them to be. Life never is, of course, but there's unexpected and then there's "watching your GP Google your partner's illness". That said, no matter how strange or difficult or horrible life becomes, there is joy there to be found, and staying alive is the only way to find it.

Oh, and I turned 32 last Saturday, which means I've been here at least ten years. Get rid of me now. Mwahahahaha.

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